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RARE DISEASE IN INDIA AND NATIONAL POLICY FOR TREATMENT OF RARE DISEASES 2021

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  RARE DISEASE ‘Rare Disease’ is broadly defined as a health condition of low prevalence that affects a small number of people when compared with other prevalent diseases in the general population, but there is no universal definition. Many cases of rare diseases may be serious, chronic and life-threatening. There are 6,000-8,000 classified rare diseases, but less than 5% have therapies available to treat them. Example: Lysosomal Storage Disorders (LSD), Pompe disease, cystic fibrosis, muscular dystrophy, spina bifida, haemophilia etc. About 95% rare diseases have no approved treatment and less than 1 in 10 patients receive disease-specific treatment. Three elements to the definition as used in various countries are: The total number of people having the disease Its prevalence Non-availability of treatment for the disorder A formal definition helps a nation to identify such diseases that require financial support for the discovery and development of drugs. This in tur

GENDER DISPARITY IN INDIA

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  Gender Inequality Gender inequality has been a social issue in India for centuries. Patriarchal norms have marked women as inferior to men. A girl child is considered a burden and is often not even allowed to see the light of the world. Discrimination starts from even before the girl child is born and sometimes, she is killed as a fetus, and if she manages to see the light of day, she is killed as an infant, which makes up the highly skewed child sex ratio. Every child deserves to reach her or his full potential, but gender inequalities in their lives and in the lives of those who care for them hinder this reality. Wherever they live in India girls and boys see gender inequality in their homes and communities every day – in textbooks, in movies, in the media and among the men and women who provide their care and support . Across India gender inequality results in unequal opportunities, and while it impacts on the lives of both genders, statistically it is girls that are the most